Quote:
Originally Posted by Itshim
Sorry can you explain the bit in bold clear is not good ?
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I have Polycystic Kidney Disease (and liver) - PKD/PLD. I've been getting over a chest infection that then turned into a kidney infection / UTI.
At the same time I started to pee a lot of blood with a lot of pain in the kidney area, which I hoped was caused by the UTI but it turns out the urine sample came back clear.
So basically from the results from an ultrasound scan my kidneys are now at a hemorrhagic stage meaning the cysts are now getting a bit too big which can burst, leak (causing bleeds) or expand further causing more pain but ultimately will end up as end stage renal failure as the cysts will overtake the healthy tissue of the kidney. (This is a hereditary disorder).
I hoped the bleeding was caused by the infection, so a clear result means it's worse news than expected. An infection can be cleared with antibiotics etc but PKD there is no cure so I know now the PKD is progressing. They are causing more pain than ever now so now I don't know where I stand. As long as whatever is left of the functioning (parts of) kidneys are working, then tests would come back clear till enough is enough and they then cease to function.
A few pics from google images
here for a better example of what PKD is. (a warning though as it ain't pretty).
Saying that, my Crohn's Disease and Tinnitus by far has a bigger impact on my life. (For the time being). Also if anyone needs any advice about anything mentioned (Crohn's especially, then please feel free to ask).