Private health firms could be given access to anonymous NHS patient records & data

[Sirius]

Originally Posted by myrtle

I think about time Data Protection has bit more teeth on regularity and government actions on personal data.

Data protection is fine until they see pound signs that's why i am shocked that isps are supposedly not selling users info and data trends they gather from dpi.

I don't agree with any Government giving anyone the right to sell my personal information to commercial companies

[mertle]

Originally Posted by Sirius

Agreed anything like this should be an automatic opt out. Then if your happy to allow anyone they see fit (as long as they pay the blood money) to read all about you then you can opt in.

nah would have to be really desperate to sacrifice for blood money

Some I think would be quite happy to earn money selling there personal data but me would fear the identity theft.

Actually did'nt someone say in america people own there data can have full control whether to sell it on.

Sadly dont think we would ever see law change.

[Ignitionnet]

Potentially fine so long as anonymisation is done properly.

As you noted, mertle, the DPA covers personal data. Stripping the data sets of this makes it a non-issue.

Still let the paranoia reign, compared with some privacy violations into our life this is absolutely nothing.

I obviously won't be opting out as I couldn't care less who has anonymised data on my various ailments I've had to manage.

[QUOTE=mertle;35340202]

martyh I am suprised you dont see the alarm bells they are huge ringing. A company could sell on to sharks what safeguards are there no bogus company can get hold of it. Once the data out the control NHS it could be mal-used for unterior motives.
QUOTE]

The only thing i see is mass hysteria and paranoia.This proposal could be a valuable tool in the developement of new drugs.Yes safeguards should be in place to prevent abuse and i'm sure they will be but paranoia shouldn't prevent the developement of such a scheme

[mertle]

Originally Posted by Sirius

My problem is that someone will make money from it and i can bet now we will see an increase in opportunistic phone calls from medical insurance companies, just like we have now from the "where there is blame there is a claim ****". They can get info on accidents and other stuff from the DVLA from what i heard.

Thats quite distressful and disgusting shows likely where info would end up.

I have really bad foot injury which needs hospital care It happened from someone standing on me that is on record. So would expect injury claim **** phoning soon then. Never claimed as it was purely accident why should I.

Sorry sirius think you got my character wrong what I was saying if anybody should profit its surely should be US. I would rather the whole mess of selling personal information/details banned.

Do agree this worrying development where we heading

Originally Posted by mertle

Thats quite distressful and disgusting shows likely where info would end up.

I have really bad foot injury which needs hospital care It happened from someone standing on me that is on record. So would expect injury claim **** phoning soon then. Never claimed as it was purely accident why should I.

Sorry sirius think you got my character wrong what I was saying if anybody should profit its surely should be US. I would rather the whole mess of selling personal information/details banned.

Do agree this worrying development where we heading

You do like using that phrase "****" don't you .Would they still be **** if they put a few grand in your back pocket ?

The data ,any data ,belongs to the person/organisation that goes to the time and expense of collecting it and they can do with it what they wish within the law

[Sirius]

Originally Posted by myrtle

That's quite distressful and disgusting shows likely where info would end up.

I have really bad foot injury which needs hospital care It happened from someone standing on me that is on record. So would expect injury claim **** phoning soon then. Never claimed as it was purely accident why should I.

Sorry sirius think you got my character wrong what I was saying if anybody should profit its surely should be US. I would rather the whole mess of selling personal information/details banned.

Do agree this worrying development where we heading

I have been subject to calls from a claim firm for the last 4 months over an accident i had in the snow last year. They know when, how and where, Registration number and type of both vehicles. They know the NAME of the other driver and then tell me i can claim against the other driver. They will not tell me where the info comes from but they do admit they paid for the information. Thing is the other driver was not in the car at the time as she was sat in her house watching telly and i slid into her parked car on a bend in a street.

[mertle]

Originally Posted by martyh

The only thing i see is mass hysteria and paranoia.This proposal could be a valuable tool in the developement of new drugs.Yes safeguards should be in place to prevent abuse and i'm sure they will be but paranoia shouldn't prevent the developement of such a scheme

Actually dont see how personally as too much data information make it harder. Said pharmasuticals already have trials data past on IF THEY request it but only given if the patient and specialist or GP put that patient forward. I have in the past done so when new drugs for my health my GP asked if minded I said no. I then had to be checked very regularly vitals etc had to keep log.

They can therefore get the required information through proper channels. they dont need to buy it cannot understand why this policy needed.

The fact also we in climate at moment where research and developments in the pharmasutical industry being pegged back or even scrapped.

So dont see how this going to benefit this area at all.

Originally Posted by Sirius

I have been subject to calls from a claim firm for the last 4 months over an accident i had in the snow last year. They know when, how and where, Registration number and type of both vehicles. They know the NAME of the other driver and then tell me i can claim against the other driver. They will not tell me where the info comes from but they do admit they paid for the information. Thing is the other driver was not in the car at the time as she was sat in her house watching telly and i slid into her parked car on a bend in a street.

So if claims companies can already get hold of such information this scheme will make no difference

[Sirius]

Originally Posted by marty

So if claims companies can already get hold of such information this scheme will make no difference

Point is where does it stop. I want this sort of thing to be an automatic opt out. If you don't mind you medical information being seen by all and sundry that's you decision. I don't what it seen by anyone but my doctor or medical staff treating me.

Originally Posted by mertle

Actually dont see how personally as too much data information make it harder. Said pharmasuticals already have trials data past on IF THEY request it but only given if the patient and specialist or GP put that patient forward. I have in the past done so when new drugs for my health my GP asked if minded I said no. I then had to be checked very regularly vitals etc had to keep log.

They can therefore get the required information through proper channels. they dont need to buy it cannot understand why this policy needed.

The fact also we in climate at moment where research and developments in the pharmasutical industry being pegged back or even scrapped.

So dont see how this going to benefit this area at all.

At the moment the drug companies use data from studies on patients who enter into drug trials .The proposed scheme (as i understand it) will allow the use of data gathered by the NHS over the lifetime of patients making the developement of treatments and drugs a much speedier affair

---------- Post added at 12:12 ---------- Previous post was at 12:04 ----------

Originally Posted by Sirius

Point is where does it stop. I want this sort of thing to be an automatic opt out. If you don't mind you medical information being seen by all and sundry that's you decision. I don't what it seen by anyone but my doctor or medical staff treating me.

I don't the see it matters myself especially given that the information will be nameless .

[mertle]

Originally Posted by Sirius

I have been subject to calls from a claim firm for the last 4 months over an accident i had in the snow last year. They know when, how and where, Registration number and type of both vehicles. They know the NAME of the other driver and then tell me i can claim against the other driver. They will not tell me where the info comes from but they do admit they paid for the information. Thing is the other driver was not in the car at the time as she was sat in her house watching telly and i slid into her parked car on a bend in a street.

Sorry to hear that hope you told them where to shove there phone.

I hate the americanisation of our legal system think we have lost sight whats an accident today.

Accidents should never have air of get as much money from the perpatraitor should only ever cover costs unless extenuating circumstances.

We goto get away from this culture it only breads covers to sky rocket, vultures and tryers who fake to get £10,000 etc.

I had incident where a driver rolled into me thankfully she owned up to it but as we was only witnesses feared she would say I hit her. She had lad who tried to convince her to lie I overheared it little. Next she slapped him said it not the way brought you up

See there is sometimes honesty its rare though

[Ignitionnet]

Sheesh. From the story on the original post - emphasis added:

Healthcare companies could be given access to anonymous NHS patient records and other NHS data under new plans.

From the title of this very thread:

Private health firms could be given access to anonymous NHS patient records & data

From mertle:

Originally Posted by mertle

Talk about patient confidentiality.

That's why it's anonymised.

Originally Posted by mertle

Problem is how do they get around already regularity rules such as DATA PROTECTION ACT.

By removing personally identifiable data through anonymisation.

Originally Posted by mertle

I think about time Data Protection has bit more teeth on regularity and government actions on personel data.

Personal data is removed, records are to be anonymised.

Originally Posted by mertle

Some I think would be quite happy to earn money selling there personal data but me would fear the identity theft.

Personal data is removed, records are to be anonymised. Impossible to steal identity with no personally identifiable information present.

Originally Posted by mertle

I would rather the whole mess of selling personal information/details banned.

Agreed, just as well this scheme doesn't involve it.

Is paranoia to be found anywhere on your records?

[Sirius]

Originally Posted by Ignitionnet

Sheesh. From the story on the original post - emphasis added:



From the title of this very thread:



From mertle:



That's why it's anonymised.



By removing personally identifiable data through anonymisation.



Personal data is removed, records are to be anonymised.



Personal data is removed, records are to be anonymised. Impossible to steal identity with no personally identifiable information present.



Agreed, just as well this scheme doesn't involve it.

Is paranoia to be found anywhere on your records?

My fear is it might start as anonymised but as soon as they see real ££££ to be made it will gradually change bit by bit as it has in the other information selling schemes

[Gary L]

Originally Posted by Sirius

They will not tell me where the info comes from but they do admit they paid for the information.

I'm not a grasser, but it was your car insurance company.