[Stephen]

Originally Posted by peanut

I know exactly what you're going through. Going through it myself but with PKD. Just feel kind of in limbo at the mo. I hope you manage to get things under control.

I tend to pee a lot of blood so have to have my blood checked often. My first iron infusion weren't too bad, but they seem to put them through quicker now and the last one I ended up really ill afterwards.

Hope you are ok.

Yeah it's not good. They are calling it renal failure for now or CKD.

I was getting my bloods every 2 weeks before the biopsy. Lots of protein and blood where it shouldn't be.