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Originally Posted by Mick
What an embarrassment our health system now looks to the rest of the world.
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I think thats being a little bit over dramatic.
The doctors do what they think is best, and by the look of this they got multiple opinions before making that decision.
I havent seen any real evidence that he would have survived other than a so called "miracle" cure. How many others with his exact condition have been cured ?
Its never been tested on the condition he has (which is apparently so rare there have only been 16 recorded cases);
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The drug has not even been tested on mice for Mitochondrial DNA depletion syndrome.
However, doctors say it has been tested on mice and patients with a different mitchondrial condition and has brought about “dramatic clinical improvements”.
A US expert said 18 people have been treated with nucleoside bypass therapy. But he added that none of them were in a condition as severe as Charlie’s.
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In fact, it seems that back in January, the doctors were willing to try this treatment, but then Charlie suffered further seizures and his condition got worse to the point they no longer considered it a viable choice.