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Originally Posted by Mick
An American dad whose son had same condition as Charlie and was treated by same doctor willing to treat Charlie in the US has blasted U.K. doctors, his son now has a better quality life. What an embarrassment our health system now looks to the rest of the world.
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If we're referring to the same US kid this one has the variant of the condition which affects the muscles rather than the brain.
https://www.thesun.co.uk/living/4091...-charlie-gard/
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Art Estopinan's son, Art Jr, suffers another form of mitochondrial depletion called TK2 - a "cousin" disease to Charlie's.
Charlie's condition is more serious as it means his brain is affected as well as his muscles.
Five years ago, Art Jr appeared to be facing death when he became the first human to be given nucleoside medication.
Art said his son was given a "new lease of life" by the drug and can now stand with the help of a brace and say a small number of words.
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It's easier to reverse muscle damage than brain damage.
I do wonder how much of this is designed to make us look like an embarrassment. If what Great Ormond Street is saying is true then this doctor didn't visit Charlie Gard, didn't consult the scans he was sent nor consider the opinion of independent Doctors that GOSH invited in. I am not sure why we're taking his word, especially when he has a financial interest in the treatment, over that of GOSH when the latter are the ones who treated him daily.