Quote:
Originally Posted by Osem
Anyone who doesn't understand the physical, mental and emotional demands of caring for disabled children ought to try it for a day or two and see how they fare..
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It can get so bad that even respite is refused as "there is no-one qualified to care for your child". And that is just one excuse we have been given during our 23 years of requesting any form of respite for our twins.
And life hasn't got any easier as they have grown into young adults.
I had a phonecall a couple of days ago for the "urgent" return of my daughter's ESA reassessment forms. Forms I only received a week before. Another hoop to jump through yet again.