Quote:
Originally Posted by TheDaddy
Iirc there is a mobility scheme involving cabs for those that can't drive cars anymore, think you can get a cab anywhere in the borough for a quid for instance. Jacket spuds including the skin helps alleviate crohns a little
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That sounds like a good idea but from what I can see it's for the London area only. I will look into seeing if there's hospital transport but from what I can find it is different for all areas.
There is a lot of truth about relying on transport as booking it in advanced doesn't mean I would be able to make use of it. If I can get the bus I will, but most decisions are made minutes before I need to leave. Sometimes I have the intentions of getting a bus, then at the last minute plans change, then even getting a taxi can be out of the question. So any kind of prior planning can make matters worse.
As for potato skins, they used to be safe. But after 25 years a lot of changed, I used to have periods of remission which was helped with a strict diet of safe foods but now as things have changed it's a struggle to find anything that I can class as safe as it's now just mainly food in general.
Obviously what is safe for some could be hell for some one else. I can't eat eggs, onion, soya (and soya protein), most oils, spices, yeast extract, salad leaves, nuts and basically anything that can be hard to digest, but I don't think I'll ever find out what is safe now or not. If I do eat any of those I'd know about it within half and hour and probably for a few days afterwards too.
But the point is there are illnesses like Crohn's that doesn't get the proper attention or awareness it deserves (who wants to listen to my toilet / bowel habits etc, hence it is classed as the 'unsociable disease'), not enough people are aware (including GPs) and because no single person is the same or have the same symptoms you hear of conflicting opinions on it. When I was first diagnosed I did have bouts of remissions and certain drugs did work (for a while). I held down a good job despite having a few problems. I know of other sufferers that can and do go to work, some go months or a lot more without any signs / symptoms and can be totally controlled by medication and basically live near normal lives. But for some it is life and soul destroying and when it is it is still difficult convince people that it is serious enough to claim benefits because on the surface I could look totally normal.