Quote:
Originally Posted by weenie
I hope you stay on it Peanut, as I can't see them changing the severe incontinence rule after all if they suffer severe diarrhoea for a day or two I wonder if they would go out on public transport or to work. I know I for one would be too scared to risk it ... like I have said before I know someone with Crohn's and it is a horrible illness, she does not know from one day to the next as how severe it is going to be and she has become a recluse since this illness has took hold of her, she used to be so out going it's a wee shame what it has done to her  as she now suffer's from depression through it... |
That's just it though isn't it, they don't have a clue just some guide line they have to follow.
I wouldn't know if I have food poisoning, bowel cancer or anything like that. The only way you can explain it to people is that is like have food poisoning or D&V (Diarrhoea & Vomiting) but for every day of your life. To go out to local shop its a risk and a gamble and you do end up being housebound. But the guide lines states a mild tummy upset with frequent periods of remission.
How many fit people would go out with D&V if they had it or even if their stomach feels just that little bit off, or just severe nausea? Just for one day?
I'm classed as severe now because most of my intestines are scarred up and don't work, so I don't have any periods of remission, drugs no longer work so and it's equivalent to a constant full blown flare up without anything other than pain meds and constant hotwater bottles on the go.
But that is just the tip of the iceberg, the pain (severe) and the 101 other things associated to Crohn's. Yeah it's just a tummy upset and we go to loo a bit more often than other people. Yeah right.
And no you do not get used to it. Just adapt and get through it day by day.