Quote:
Originally Posted by Chris
Ah, but allow *what* to happen, exactly? Most of the speculation in this thread has been about the prospect of lawyers junk-mailing sick people on the basis of data bought from the NHS. Something that simply was not part of the announcement made by the Coalition.
It's not surprising of course, the thread was started by a member of this forum who seems to spend rather a lot of time scouring the internet for stories that back up his prejudices (or, if read with eyes half shut, could be made to back up his prejudices), which really rather got it off on the wrong footing.
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Personel attacks uncalled for all I am concerned why this even needed. I posted it for people to see to make there own minds up. Just because people got similar views of concerns too, so what its there opinion I did not influence theres.
Thats what forum is for is it not. Naturally not everyone agree with views. Fine you dont agree with views but personal attacks is lowest lows.
I have not gone out to attack you. Why should I let things go.
I have in the past consented the industry went through PROPER channels to require the DATA and the people for subjects to test there product.
I was invited after GP contacted me infact maybe doing more trials yet doc not sure though whether to put me forward for this. Lot of sacrifices as would have to go away for awhile to this clinic. Test could be 6 months to 12 months its big commitment.
Infact I was test subject for few years on various trial treatments. Most failed horridly but latest works and became major player in the easing of sufferers.
Even Ravenheart showed there is already system in place for these companies. Dont think wise to drop protection doubt this will even quicken anything up.
You cant cut corners in testing its too dangerous it takes years to test in labs on animals before human tests. The human trials takes long time too any shortcutting would be very dangerous.
There is tests which get refused too risky or for reason like not been tested enough would they get go aheads without the protection. Lets not forget those students who died trialing a drug. Drop those safeguards we could be in unknown world.
For the system to work they need the correct data but they need the patients too for there trials. If its anomynous how would they contact the GP/specialist to ask for that person in human trials.
There flaws in the whole idea some little nasty unknowns.
Some will accept with question governments are afterall angelic in there policies never have stinging tails.
Another why need that postcode why do they need them if its demagraphics then simply Mr Smith from nottingham should be enough.
Postcodes could be way to find you for sure in some places it might not in others it would lead you right to your doorstep.
With using 192.com you could find the individual when knowing AGE. You could match the person.
As not selling details afterwards I had phone from medical company who was selling products for my illness. Everyone I talked to denied selling as they complied with my none third party request. I could only conclude it was boots or the trials company. I was anoyed that someone breached there remit.