Cable Forum - View Single Post - Private health firms could be given access to anonymous NHS patient records & data

Ravenheart · 06-12-2011, 06:16

I thought I'd hang fire commenting on this until I'd read more on actually what was being suggested.

What the government is suggesting isn't really anything new, I've been involved in similar information sharing for around 18 years and I'm sure others are too, but I must express that this was with my own consent to each of them, which I think is the important part of all this.

my first involvement was around 16 years ago aged 29, when I consented to having some of the bone removed during my hip replacement for research, into the effects of RA on joints. I consented, as I'm always keen to improve medical knowledge so that in the future these sort of things will be better understood. I've donated other bone samples since during various other bionic upgrades and I'm currently involved in a study into the effects of long term inflammation and the increased risk of cardio vascular disease and stroke, which is being done with the various rheumatology units across the UK and Europe and the University of Manchester.

I feel that the most important thing in all this is that being involved in any kind of medical research is on an opt in basis and this consent is given by the patient for each research project, and not a universal opt in.

06-12-2011, 06:16	#81
Ravenheart Inactive Join Date: Mar 2008 Location: South Birmingham Posts: 1,427	Re: Private health firms could be given access to anonymous NHS patient records & dat I thought I'd hang fire commenting on this until I'd read more on actually what was being suggested. What the government is suggesting isn't really anything new, I've been involved in similar information sharing for around 18 years and I'm sure others are too, but I must express that this was with my own consent to each of them, which I think is the important part of all this. my first involvement was around 16 years ago aged 29, when I consented to having some of the bone removed during my hip replacement for research, into the effects of RA on joints. I consented, as I'm always keen to improve medical knowledge so that in the future these sort of things will be better understood. I've donated other bone samples since during various other bionic upgrades and I'm currently involved in a study into the effects of long term inflammation and the increased risk of cardio vascular disease and stroke, which is being done with the various rheumatology units across the UK and Europe and the University of Manchester. I feel that the most important thing in all this is that being involved in any kind of medical research is on an opt in basis and this consent is given by the patient for each research project, and not a universal opt in.