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keriene · 04-03-2008, 23:17

Thanks Popper, that really did help alot!
ok...
i am 15,
when you said it seem like the body is trying to get rid of a toxin, I know for many other people that would be the explanation for the Vomiting, but for CVS sufferers that is not the case. We all change Diets, Products, Daily routines etc to see if it makes a difference and most of the time it doesnt.
Most people i know that have it was either born with it or got it in early childhood.
If it was as simple as Toxins it would have been solved by now, That has already been checked by doctors.
Triggers on the other hand is a bit trickeyer. Some people have no known triggers and some have a small amount of triggers, as for me nearly everything triggers a 'attack' like - getting to excited/sad, arguements, Tiredness, sick people (people with stomach viruses, colds, flu's, coughs etc.), Products (facemasks, soapes, shampoos), Foods (Oil, sauces), Illnesses and manymore i havent quite worked out.

peanutkp
i know what you are trying to say about you not being able to answer the questions like 'how would you deal with it' and so on, because everybody will deal with it differently but thats the whole reason i am asking! I know everybody will have a different point of view with having a illness like mine but i want to know how YOU will deal with it! so i can get as many different points of views as possible and that will also allow me to see things in a different way apart from MY way.
I hope you can understand where i am going with this!

and thanks all for the help so far

PS. there is more about this illness at - http://www.childrenfirst.nhs.uk/teen...ons/c/cvs.html

---------- Post added at 22:17 ---------- Previous post was at 22:00 ----------

webcrawler2050
There isnt much Doctors can do as they dont know what causes, all they do know is that it is related to stomach epilepsy,stomach migranes and migraines
all they can do is try out medication on us, some of them have no effect at all, some of them work well, some of them have bad effects like weight gain, paranoia and anxiety but most of them stop working after a wile.

and also to be honest with you we dont have painfull stomaches or guts, we only usually have pain in the stomaches when we have a attack (it is like a ripping,pulling pain) but when we are not having attacks we are healthy and like normal people.

sometimes we have no idea we are going to have a attack and sometimes we get pain as a warning or saliva fills up in our mouth (which is not very nice)

04-03-2008, 23:17	#9
keriene Inactive Join Date: Mar 2008 Posts: 10	Re: i have a rare illness called CVS Thanks Popper, that really did help alot! ok... i am 15, when you said it seem like the body is trying to get rid of a toxin, I know for many other people that would be the explanation for the Vomiting, but for CVS sufferers that is not the case. We all change Diets, Products, Daily routines etc to see if it makes a difference and most of the time it doesnt. Most people i know that have it was either born with it or got it in early childhood. If it was as simple as Toxins it would have been solved by now, That has already been checked by doctors. Triggers on the other hand is a bit trickeyer. Some people have no known triggers and some have a small amount of triggers, as for me nearly everything triggers a 'attack' like - getting to excited/sad, arguements, Tiredness, sick people (people with stomach viruses, colds, flu's, coughs etc.), Products (facemasks, soapes, shampoos), Foods (Oil, sauces), Illnesses and manymore i havent quite worked out. peanutkp i know what you are trying to say about you not being able to answer the questions like 'how would you deal with it' and so on, because everybody will deal with it differently but thats the whole reason i am asking! I know everybody will have a different point of view with having a illness like mine but i want to know how YOU will deal with it! so i can get as many different points of views as possible and that will also allow me to see things in a different way apart from MY way. I hope you can understand where i am going with this! and thanks all for the help so far PS. there is more about this illness at - http://www.childrenfirst.nhs.uk/teen...ons/c/cvs.html ---------- Post added at 22:17 ---------- Previous post was at 22:00 ---------- webcrawler2050 There isnt much Doctors can do as they dont know what causes, all they do know is that it is related to stomach epilepsy,stomach migranes and migraines all they can do is try out medication on us, some of them have no effect at all, some of them work well, some of them have bad effects like weight gain, paranoia and anxiety but most of them stop working after a wile. and also to be honest with you we dont have painfull stomaches or guts, we only usually have pain in the stomaches when we have a attack (it is like a ripping,pulling pain) but when we are not having attacks we are healthy and like normal people. sometimes we have no idea we are going to have a attack and sometimes we get pain as a warning or saliva fills up in our mouth (which is not very nice)