Thread: i have a rare illness called CVS
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Old 03-03-2008, 23:31   #2
Caff
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Re: i have a rare illness called CVS
I have no knowledge or expertise on this - but I wondered if you have support from somewhere online like this:

http://health.groups.yahoo.com/group...ting_Syndrome/

or read this?
http://www.pediatricweb.com/seattle/...?ArticleID=797

Your doctor should be able to point you to somewhere more helpful? Have you asked?

I'm sorry that you don't always get support from family or friends.
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