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-   -   Update: Charlie Gard has died R.I.P (https://www.cableforum.uk/board/showthread.php?t=33705158)

Maggy 23-07-2017 09:13

Update: Charlie Gard has died R.I.P
 
http://www.bbc.co.uk/news/uk-england-london-40691478

Quote:

Staff at Great Ormond Street Hospital have received death threats over the treatment of baby Charlie Gard.
The hospital said police had been called after families were "harassed" and "unacceptable behaviour" was recorded in the hospital.
Appalling! Here are people who dedicate their lives to looking after very sick children with very difficult and complex conditions that even Solomon would find it impossible to make a decision as to the best way forward and they get treated like this..

papa smurf 23-07-2017 09:56

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
the hospital want's to turn off life support chances of survival 0%

the parents want to try a new treatment with a 10% success rate [i believe thats correct]

so what's the problem with trying ?while there's life there's hope would any parent give up on their baby ,this is bringing out emotions in people who like me can't understand the unwillingness to try there is nothing to lose here .

Maggy 23-07-2017 10:50

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Missed the point entirely papa..again.It's the death threats that are the subject of this conversation.

papa smurf 23-07-2017 10:57

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by Maggy J (Post 35908843)
Missed the point entirely papa..again.It's the death threats that are the subject of this conversation.

no you just ignored the fact that the hospital wants to euthanise him ,that's why the death threats are happening ,people want this child to be given every chance , there is a reason why people are getting emotional about this and it cannot be brushed under the carpet not even by you .

Maggy 23-07-2017 11:11

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
So it's OK to be a keyboard warrior and threaten violence against people who are just doing their best for the child.Charming.

papa smurf 23-07-2017 11:22

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by Maggy J (Post 35908849)
So it's OK to be a keyboard warrior and threaten violence against people who are just doing their best for the child.Charming.

i'm not saying that i'm saying emotions are running at fever pitch over this issue ,keyboard warriors type all sorts of rubbish that they have no intention of carrying out , but that is no excuse it does however show the feeling behind these threats people care about this child and where children are involved emotions take over reason that's just being human .

Damien 23-07-2017 11:45

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
We're talking about Great Ormond Street here. An institution that is rightly well-respected and admired across the country. If anyone seriously thinks the medical staff who work there have anything other than the best of intentions, even if they disagree with some of their decisions, they need to step back for bit. The people who go as far to send threats to those doctors and nurses need their heads examined as well as a visit from the police.

My understanding is that this treatment is very experimental, clinical trails stage, and the medical staff at GOSH do not believe it be effective or required in this case. It's not a cure but something which slows the progression of the disease. Critically it doesn't reverse damage the disease has already happened.

GOSH are saying Charlie Gard has significant brain damage, cannot see, hear, or move. They believe that because of this it's not in his best interests to be kept alive and that he will continue to be pain.

The parents obviously do not want to give up. I don't think anyone could blame them either.

Sometimes things are just tragic all around and there is no easy answer or moral certainty. Even if a bunch of angry, dim-witted, morons think there is and send death threats as a result even after the child's parents have condemned such actions repeatedly.

Mick 23-07-2017 12:20

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
This topic has a more standing issue.

No state or institution should have the right over parents and dictate that child's fate, especially if another institution, in another part of the world says they can provide some chance of success. I don't care how well respected GOSH is, they don't and should not have the right to end the childs life, against the parents wishes.

It's like on Friday, GOSH lawyers announcing in court the latest scan results, the parents should have had these results told to them in the hospital, not hearing such information in a legal proceeding, no wonder Charlie's dad shouted "Evil" at them and Charlie's mother storming out, this smacks if slyness and underhanded tactics, to try gain upperhand in a court setting, and it's like, to hell with communicating such findings with the parents in a compassionate manner, in the hospital, as it should be.

denphone 23-07-2017 12:23

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by Maggy J (Post 35908836)
http://www.bbc.co.uk/news/uk-england-london-40691478



Appalling! Here are people who dedicate their lives to looking after very sick children with very difficult and complex conditions that even Solomon would find it impossible to make a decision as to the best way forward and they get treated like this..

Sadly abuse has become a increasing epidemic in this country and some need to look at themselves and use their brains before they opening their big abuse filled gobs.

Osem 23-07-2017 13:11

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Death threats have always been made whether by kids fighting in the playground, yobs in the street and even amongst families and neighbours. The only different now is that social media allows (even encourages) angry people to vent that anger in this manner and records it for others to view, speculate about and even weaponise. Does anyone seriously think that any of the staff at GOS are going to be killed? This sort of thing is clearly not acceptable and must be awful for the targets but let's get real.

As it stands the only person who's life is at serious risk is the poor child and I reckon any chance is better than no chance. If pain and suffering is the argument for terminating this life, how do the medics reconcile that with the fact that people are forced to endure pain and suffering every day withing the NHS in order to prolong their lives?

The money has been raised and any pain and suffering has been extended far longer due to all the legal argument about whether or not to give the treatment. Just get on with it, let the boy have a chance and let the desperate parents at least feel they did whatever they could. The treatment isn't going to cause any more pain than he's already suffering and if it doesn't work then that'll be the time to act.

Damien 23-07-2017 13:56

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by Osem (Post 35908869)
Death threats have always been made whether by kids fighting in the playground, yobs in the street and even amongst families and neighbours. The only different now is that social media allows (even encourages) angry people to vent that anger in this manner and records it for others to view, speculate about and even weaponise. Does anyone seriously think that any of the staff at GOS are going to be killed? This sort of thing is clearly not acceptable and must be awful for the targets but let's get real.
.

It's not just social media. The hospital are saying people are coming up to them on the street if they're wearing anything by which they can be identified. It's a sick mind that abuses people whose job is working in a children's hospital.

---------- Post added at 13:56 ---------- Previous post was at 13:50 ----------

Quote:

Originally Posted by denphone (Post 35908859)
Sadly abuse has become a increasing epidemic in this country and some need to look at themselves and use their brains before they opening their big abuse filled gobs.

Everyone just seems to be full of hate all the time.

RizzyKing 23-07-2017 15:18

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
We had a family across the road whose child had an illness that GOSH dealt with for years supporting both the kid and the parents the whole way with staff even coming to their house despite being way out of London. That hospital and it's staff are amongst the best anywhere in the world and bust a gut to help every child under their care I've seen nothing to say they are doing any less in this case and by the sounds of it this little kid has no real life and no possibility of that. It's a tragic situation and my heart goes out to the parents they are going through the worst nightmare any parent could ever go through and being so close they will grasp anything that may do something.

It has become the way things are that angry is now a much more common response to situations and the internet has allowed one angry person to reach and incite others to join in the anger. We're now at the point where the staff of a highly respected and regarded children's hospital are legitimate targets in the minds of some. This says a lot about the country we are and are becoming as things will only get worse.

Osem 23-07-2017 16:32

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by Damien (Post 35908881)
It's not just social media. The hospital are saying people are coming up to them on the street if they're wearing anything by which they can be identified. It's a sick mind that abuses people whose job is working in a children's hospital.

---------- Post added at 13:56 ---------- Previous post was at 13:50 ----------



Everyone just seems to be full of hate all the time.

I'm not surprised but those people have likely seen the stuff on social media first. It's not acceptable, fair or pleasant but it's what happens these days sadly and IMHO social media is largely responsible for spreading the extreme anger/hatred. Osem Jnr # 2 was treated at GOSH when he was a lad so I have no reason to have anything other than great respect for those who work there even though I disagree totally with their intention to end that young boy's life.

The ordinary council staff in Kensington had nothing to do with the Grenfell Towers tragedy yet they were confronted by an angry mob baying for blood and it wouldn't have taken very much for something really serious to kick off. Who was responsible for that? Rumours, wild claims, inflammatory remarks made, published online, exaggerated then republished soon creates anger and hostility based on very little. Sick minds hell bent on stirring up trouble amongst vulnerable and angry people did that. Just look at the anger being created by the propagation by certain politicians, 'community leaders', advisors etc. about the supposed police cover up re the number of dead. Pure stirring and political opportunism.

Everyone seems to be full of hate because social media propagates it and far too many people spend far too much of their time on it. I don't so my view is different. They have a direct interest in generating traffic and hits and so far seem to hev resisted any serious attempts to get them to be far more rigorous in removing this stuff from their sites. That's not surprising given the amount of money involved in those businesses. What, in the past, would have been an idle threat or two from some sad people suddenly gets picked up on, amplified then goes viral then the inevitable bandwagon jumping starts. People like Farage and Trump have been the victims of the most terrible abuse yet nobody much took it seriously - fair game they are apparently. I dare say a lot of people complaining about the abuse of GOS staff don't care quite so much when it's someone they don't like.

What people need to realise is that what goes around comes around and those playing nasty on the internet with anyone who dares to disagree will eventually be on the receiving end of similar nastiness. It feeds on itself and yes it will continue to escalate unless something is done to control the posting of threats, abuse etc. online. Loony lefties think it's just fine and cool to parade with effigies of the PM's severed head on a pole and their political leaders either condone it or say nothing.

Thankfully we're not yet at the point where these threats often translate into anything much more than hot air but we need to be careful about what's happening in front of our noses.

Mick 23-07-2017 16:48

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
I think if the ruling tomorrow goes against the parents wishes, I think the abuse is only going to get angrier. People feel the State has too much power and deciding over the wishes of the parents.

But it is abolutely crucial we don't have a judicial system that is ruled by social mob justice via tweets and abuse. It's a very tragic case, not one any of us would even remotely want to be in.

Osem 23-07-2017 16:54

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by Mick (Post 35908912)
I think if the ruling tomorrow goes against the parents wishes, I think the abuse is only going to get angrier. People feel the State has too much power and deciding over the wishes of the parents.

But it is abolutely crucial we don't have a judicial system that is ruled by social mob justice via tweets and abuse. It's a very tragic case, not one any of us would even remotely want to be in.

It doesn't help that we have one the one hand a medical team who want to end a young life for reasons they've explained yet on the other there are so many people of perfectly sound mind who're forced to endure the most terrible suffering at the ends of their lives. It makes no sense to me. :shrug:

TheDaddy 23-07-2017 16:59

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by papa smurf (Post 35908852)
i'm not saying that i'm saying emotions are running at fever pitch over this issue ,keyboard warriors type all sorts of rubbish that they have no intention of carrying out , but that is no excuse it does however show the feeling behind these threats people care about this child and where children are involved emotions take over reason that's just being human .

I don't think it's being human, it's being a moron, you can have strong feelings without resorting to behaviour like this especially when you consider the people they're threatening are looking after other very ill children to.

Damien 23-07-2017 17:11

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by Osem (Post 35908913)
It doesn't help that we have one the one hand a medical team who want to end a young life for reasons they've explained yet on the other there are so many people of perfectly sound mind who're forced to endure the most terrible suffering at the ends of their lives. It makes no sense to me. :shrug:

I guess a lot of Doctors would say the same. I.E There are limits to what medicine can do.

I think the critical difference here is that this is ending life support. People can't chose intervention to end to their lives but they can chose to stop receiving treatment other than palliative care.

RizzyKing 23-07-2017 19:43

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
I have as little to do with social media as i ca, like most i have a facebook account the wife uses for some game or other but even I'm aware of how unpleasant much of the social media is and society just isn't prepared for it. In many ways we are still an analog society in terms of laws and attitudes and the internet while i personally think is the best thing that's happened to the vast vast majority has become an easy way for those in society who used to be unacceptable to project their hatred, ignorance and violence to a wider audience and once it's picked up by a few like a snowball it rolls and we get to where we are.

While there are politicians and people i loathe and utterly despise i don't wish them physical harm nor would i threaten it because i was brought up to think for myself and have a decent idea of right and wrong. Many of the most active hate spreaders on non religious issues such as this are under 35 and their general attitude is more hostile and reactionary then those who are older. We have a big problem within our society that no one wants to acknowledge let alone discuss or try to rectify and it's getting worse and will lead to physical violence.

richard s 23-07-2017 20:20

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Pure little chap sadly has or never will have a life. As for the morons issuing death threats to the good folk at the hospital shame on them, what type of people are these.

Osem 23-07-2017 20:39

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by Damien (Post 35908916)
I guess a lot of Doctors would say the same. I.E There are limits to what medicine can do.

I think the critical difference here is that this is ending life support. People can't chose intervention to end to their lives but they can chose to stop receiving treatment other than palliative care.

Palliative care isn't pain or suffering free though. We had the pleasure of my perfectly lucid father gradually fading away over a period of a couple of weeks when nobody wanted that, least of all him. They're arguing that the little lad might be in pain. They say 'might' be because they don't actually know for sure. IMHO if he is in pain and if he was able to articulate his feelings he'd accept the pain and discomfort for a chance of life and to be with his loved ones just like so many, for example, young cancer suffers do. How many of them just give up? The vast majority fight and endure sometimes years of pain, discomfort, investigations and treatment just to cling onto life. Why would he be any different? There's no doubt in my mind that he should be given that chance albeit a very slim one it seems. It's really is the most awful situation and the parents need to be allowed to play their last card for their little lad.

Getting back to the OP, there are plenty of people I detest but I wouldn't threaten them or wish them dead. Whether or not those who issue these 'death threats' really mean it is doubtful in the vast majority of cases but it does say something very sad about them.

RizzyKing 23-07-2017 20:48

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Speaking personally i hang on because I haven't been in pain my whole life and can remember a time when i was fully fit and i understand medical technology is progressing all the time and may allow me oneday to be pain free again. How much of that applies to this poor little kid he may be in excruciating pain and may be so for the rest of his life with no end in sight and won't have a time without pain to keep him going and has zero comprehension of medical technology. Parents instinctively choose what may prolong his life and that's 100% natural and understandable and I can't imagine being in their shoes but the medical staff and I'm assuming more then a couple came to their conclusion because they believe it's the right outcome.

Osem 23-07-2017 20:54

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by RizzyKing (Post 35908941)
Speaking personally i hang on because I haven't been in pain my whole life and can remember a time when i was fully fit and i understand medical technology is progressing all the time and may allow me oneday to be pain free again. How much of that applies to this poor little kid he may be in excruciating pain and may be so for the rest of his life with no end in sight and won't have a time without pain to keep him going and has zero comprehension of medical technology. Parents instinctively choose what may prolong his life and that's 100% natural and understandable and I can't imagine being in their shoes but the medical staff and I'm assuming more then a couple came to their conclusion because they believe it's the right outcome.

The trouble is that it's a guessing game on both sides of the argument and in that sad eventuality the chance of life has to be taken. IIRC this treatment can be easily administered and is as risk free as anything is. As I said before, this lad's already been left in this state for far longer than needed to be the case simply because of all the arguing. Just give the medication and see. That's the only way something good can come of this even if that is just the parents being able to say they did everything they could. If they don't get that chance they'll be left forever wondering why and suffering even more. I reckon they've all suffered enough.

papa smurf 23-07-2017 21:19

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by richard s (Post 35908938)
Pure little chap sadly has or never will have a life. As for the morons issuing death threats to the good folk at the hospital shame on them, what type of people are these.

pro lifers ?

Damien 23-07-2017 21:31

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
GOSH's own views are here: http://www.gosh.nhs.uk/frequently-as...ard-court-case

Explains their motivations on this case.

Arthurgray50@blu 23-07-2017 21:45

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Sadly, there are two sides to this. And members have forgotten this.

The death threats to the medical staff is unforgivable. BUT, we are talking about a persons life in the hands of Drs. here.

If it was my child, l would do everything possible to keep that child alive. And seeking EVERY medical help where possible.

The parents have been given help from across the world. And l believe there are several children's alive with the same symptoms. As the parents did not give up.

The biggest problem is, and l have said this for years. America is about twenty years ahead of us on Medical grounds. And are always prepared to test new drugs, and medical techniques. Whereas this country gives up.

The emotions of relatives and many friends are in a position where there opinion's are high on the agenda.

Lawyers are working for nothing to help the parents. BUT, it doesn't help when GOSH lawyers say something, before the parents are told. That is totally wrong.

The poor little boy is being seen by Drs from abroad.

GOSH Drs, do have a certain right for the patient, but l firmly believe that if the poor boy, is beyond medical help. Then the parents should be allowed home to die with dignity

RizzyKing 23-07-2017 22:52

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Reading that does make me come down more on the GOSH side and while parents should have the comfort of knowing they did all they could in this case a US doctor is still willing to use the treatment that will do the kid no good and will not reverse any of the existing damage to the brain. This is a truly tragic situation but no one has anything concrete to attempt on the kiddie that will give him a manageable let alone half decent life and sadly if nucleoside didn't work I'm sure it won't be long before another doctor somewhere comes up with another treatment for the parents to put their hopes on.

Maggy 23-07-2017 23:48

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
It's just not going to end well for the poor boy whatever is decided..

RizzyKing 24-07-2017 00:24

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
No it's one of those situations where there is no winner no happy ending and when we are talking about a little kiddie one of those things that should make us all sick and hope it's a very rare situation.

Mick 24-07-2017 14:36

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
BREAKING: Parents withdraw the application in the court room, to take Charlie to the US saying time has run out and it is no longer in Charlie's best interest. :(

weenie 24-07-2017 15:00

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Heartbreaking

Mick 24-07-2017 15:15

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Connie Yates. (Mother) Says while speaking in court, says he won't make his first birthday, which is next week. :(

denphone 24-07-2017 15:54

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by Mick (Post 35909013)
BREAKING: Parents withdraw the application in the court room, to take Charlie to the US saying time has run out and it is no longer in Charlie's best interest. :(

Although extremely heart-breaking it was the right thing to do.

Osem 24-07-2017 16:30

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
So very sad. I hope the parents can move on from this tragedy and one day be able to look back on their short time with their little lad with smiles rather than tears. :(

papa smurf 24-07-2017 21:59

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
'We had a chance and we were not allowed': Charlie Gard's parents blame hospital as they end legal fight to save baby's life

Charlie Gard’s parents accused Great Ormond Street Hospital of delaying treatment until it was too late as they gave up their legal fight to save “their warrior son”.

http://www.telegraph.co.uk/news/2017...-could-decide/

Damien 24-07-2017 22:35

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Gosh are disputing that: http://www.gosh.nhs.uk/news/latest-p...t-24-july-2017

Quote:

Professor Hirano (“the Professor”), whose laboratory research has an international reputation, is very well known to the experts at GOSH and he communicated with them about NBT treatment for Charlie at the very end of December. In January, GOSH invited the Professor to come and see Charlie. That invitation remained open at all times but was not taken up until 18 July after being extended, once again, this time by the Court.
Quote:

It was, therefore, with increasing surprise and disappointment that the hospital listened to the Professor’s fresh evidence to the Court. On 13 July he stated that not only had he not visited the hospital to examine Charlie but in addition, he had not read Charlie’s contemporaneous medical records or viewed Charlie’s brain imaging or read all of the second opinions about Charlie’s condition (obtained from experts all of whom had taken the opportunity to examine him and consider his records) or even read the Judge’s decision made on 11 April. Further, GOSH was concerned to hear the Professor state, for the first time, whilst in the witness box, that he retains a financial interest in some of the NBT compounds he proposed prescribing for Charlie. Devastatingly, the information obtained since 13 July gives no cause for optimism. Rather, it confirms that whilst NBT may well assist others in the future, it cannot and could not have assisted Charlie.

RizzyKing 24-07-2017 22:43

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
So the american doctor's interest increased with the publicity and rather then doing what was best for the little kiddie was more interested in promoting himself. I wish his parents all the best but the more i hear the more relieved i am this kiddie wasn't taken to the US R.I.P Charlie sleep easy.

papa smurf 24-07-2017 23:12

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by RizzyKing (Post 35909070)
So the american doctor's interest increased with the publicity and rather then doing what was best for the little kiddie was more interested in promoting himself. I wish his parents all the best but the more i hear the more relieved i am this kiddie wasn't taken to the US R.I.P Charlie sleep easy.



he's still alive

Connie Yates and Chris Gard say they now wish to spend "the maximum amount of time they have left" with their terminally ill baby.

RizzyKing 25-07-2017 01:09

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Apologies head is pounding and i misread.

Mr K 25-07-2017 09:44

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Sounds like the parents have been manipulated by the media, in order to sell newspapers, and further others agendas. Same old story. Some of the pictures and interviews have be worthy of a Hollywood production.

Hope the kid rests in peace and, if the parents do sell their story, all the money is given to GOSH or another charity.

papa smurf 25-07-2017 10:10

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by Mr K (Post 35909088)
Sounds like the parents have been manipulated by the media, in order to sell newspapers, and further others agendas. Same old story. Some of the pictures and interviews have be worthy of a Hollywood production.

Hope the kid rests in peace and, if the parents do sell their story, all the money is given to GOSH or another charity.

can i just point out that it is common courtesy to wait until a person is dead before issuing rip statements

Mr K 25-07-2017 10:18

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by papa smurf (Post 35909095)
can i just point out that it is common courtesy to wait until a person is dead before issuing rip statements

You could argue the kid has suffered so much brain damage he was dead some time ago. Hopefully that might mean he hasn't suffered over the last few protracted weeks. All very sad.

papa smurf 25-07-2017 10:19

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by Mr K (Post 35909096)
You could argue the kid has suffered so much brain damage he was dead some time ago. Hopefully that might mean he hasn't suffered over the last few protracted weeks. All very sad.

no i couldn't

Mick 25-07-2017 10:30

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by papa smurf (Post 35909098)
no i couldn't

Nor me. The stupid legal battles and delays have robbed that poor boy of a chance of life.

An American dad whose son had same condition as Charlie and was treated by same doctor willing to treat Charlie in the US has blasted U.K. doctors, his son now has a better quality life. What an embarrassment our health system now looks to the rest of the world.

Damien 25-07-2017 11:50

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by Mick (Post 35909103)
An American dad whose son had same condition as Charlie and was treated by same doctor willing to treat Charlie in the US has blasted U.K. doctors, his son now has a better quality life. What an embarrassment our health system now looks to the rest of the world.

If we're referring to the same US kid this one has the variant of the condition which affects the muscles rather than the brain.

https://www.thesun.co.uk/living/4091...-charlie-gard/

Quote:

Art Estopinan's son, Art Jr, suffers another form of mitochondrial depletion called TK2 - a "cousin" disease to Charlie's.

Charlie's condition is more serious as it means his brain is affected as well as his muscles.

Five years ago, Art Jr appeared to be facing death when he became the first human to be given nucleoside medication.

Art said his son was given a "new lease of life" by the drug and can now stand with the help of a brace and say a small number of words.
It's easier to reverse muscle damage than brain damage.

I do wonder how much of this is designed to make us look like an embarrassment. If what Great Ormond Street is saying is true then this doctor didn't visit Charlie Gard, didn't consult the scans he was sent nor consider the opinion of independent Doctors that GOSH invited in. I am not sure why we're taking his word, especially when he has a financial interest in the treatment, over that of GOSH when the latter are the ones who treated him daily.

Mick 25-07-2017 13:31

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
The parents believed he did not have significant brain damage earlier on, they show a photo of him in early days in Superman outfit, eyes open and responding normally, he looked like a healthy baby boy.

GOSH have gone down in my estimations. No parent should have to fight the courts in such time wasting fashion. No doctor is right 100% of the time.

Damien 25-07-2017 13:46

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by Mick (Post 35909124)
The parents believed he did not have significant brain damage earlier on, they show a photo of him in early days in Superman outfit, eyes open and responding normally, he looked like a healthy baby boy.

It's a progressive condition. I don't know when those photos were taken but I doubt it was when GOSH recommend ending life support which is when this court process started.

Quote:

Originally Posted by Mick (Post 35909124)
GOSH have gone down in my estimations. No parent should have to fight the courts in such time wasting fashion. No doctor is right 100% of the time.

No but GOSH sought second opinions which their statement claims were not reviewed but this American doctor. Why should we trust his judgement that his treatment would have worked had it been administrated earlier when he didn't visit the patient or review the records from that time?

The only doctors who personally examined Charlie Gard concurred with GOSH it seems.

Paul 25-07-2017 14:25

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by Mick (Post 35909103)
What an embarrassment our health system now looks to the rest of the world.

I think thats being a little bit over dramatic.
The doctors do what they think is best, and by the look of this they got multiple opinions before making that decision.
I havent seen any real evidence that he would have survived other than a so called "miracle" cure. How many others with his exact condition have been cured ?

Its never been tested on the condition he has (which is apparently so rare there have only been 16 recorded cases);

Quote:

The drug has not even been tested on mice for Mitochondrial DNA depletion syndrome.

However, doctors say it has been tested on mice and patients with a different mitchondrial condition and has brought about “dramatic clinical improvements”.

A US expert said 18 people have been treated with nucleoside bypass therapy. But he added that none of them were in a condition as severe as Charlie’s.
In fact, it seems that back in January, the doctors were willing to try this treatment, but then Charlie suffered further seizures and his condition got worse to the point they no longer considered it a viable choice.

Mick 25-07-2017 14:44

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Parents want to take Charlie home to die, to let him die at home, in comfort and with dignity, lawyers for family say, GOSH putting obstacles in the way of the parents even being allowed to do this.

Damien 25-07-2017 14:49

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by Mick (Post 35909136)
Parents want to take Charlie home to die, to let him die at home, in comfort and with dignity, lawyers for family say, GOSH putting obstacles in the way of the parents even being allowed to do this.

GOSH's concern seems to be the ability to administer palliative care (i.e pain relief) and have suggested a hospice.

Paul 25-07-2017 14:54

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by Mick (Post 35909136)
Parents want to take Charlie home to die, to let him die at home, in comfort and with dignity, lawyers for family say, GOSH putting obstacles in the way of the parents even being allowed to do this.

I havent looked yet so this maybe off the mark, but given the life support machines are basically the only thing keeping him alive (and pain free) I would imagine they think its difficult to unhook him, and then transport him to a home without causing him further pain, and him maybe dying before he ever gets home.

papa smurf 25-07-2017 15:03

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by Mick (Post 35909136)
Parents want to take Charlie home to die, to let him die at home, in comfort and with dignity, lawyers for family say, GOSH putting obstacles in the way of the parents even being allowed to do this.

this just stinks , who would trust them with another child after this debacle and hospice care is just pumping you full of morphine until your heart gives in your pain managed to death .

denphone 25-07-2017 15:13

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by Mick (Post 35909103)
Nor me. The stupid legal battles and delays have robbed that poor boy of a chance of life.

An American dad whose son had same condition as Charlie and was treated by same doctor willing to treat Charlie in the US has blasted U.K. doctors, his son now has a better quality life. What an embarrassment our health system now looks to the rest of the world.

Not for me as l can only talk about my own personal experiences over the last 20 years having to go to specialist hospitals a lot and the treatment and care l received was exemplary to say the least plus the staff however high up treated me as one of the family even when important discussions were taking place regarding my ongoing health management plans.

Damien 25-07-2017 15:16

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by papa smurf (Post 35909140)
this just stinks , who would trust them with another child after this debacle and hospice care is just pumping you full of morphine until your heart gives in your pain managed to death .

Better than being in a lot of pain until you die.

Paul 25-07-2017 15:16

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by papa smurf (Post 35909140)
this just stinks , who would trust them with another child after this debacle

Pretty much anyone whose child is in need of hospital / medical treatment.

weenie 25-07-2017 15:44

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Truly horrendous this situation is and I cannot even imagine it at all, part of me thinks please GOSH let him pass away at home if this can be arranged without causing further pain and discomfort just please give these poor parents a memory of having their son at home. Yet the other part of me is thinking please just stop battling now you have did all you can but sadly now the time has come to now spend what precious time you have left with your baby boy, take him in your arms and cherish your final moments.

Mr K 25-07-2017 15:52

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by weenie (Post 35909151)
Truly horrendous this situation is and I cannot even imagine it at all, part of me thinks please GOSH let him pass away at home if this can be arranged without causing further pain and discomfort just please give these poor parents a memory of having their son at home. Yet the other part of me is thinking please just stop battling now you have did all you can but sadly now the time has come to now spend what precious time you have left with your baby boy, take him in your arms and cherish your final moments.

Seems to be confrontation for confrontations sake atm, with lawyers all over it trying to make as much money as possible. These parents have been very badly advised, they should be speaking to Drs and Nurses, not lawyers and newspapers, and spending time with their son, not in the courts.

Maggy 25-07-2017 22:33

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
I hope they get what they want..but I am glad that they have been able to finally accept that it's time to let go.

Let us not forget that those caring for Charlie Gard may well be parents themselves and can empathise only too well but have to balance what the parents want with the needs of their patient.

TheDaddy 26-07-2017 04:14

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
Quote:

Originally Posted by weenie (Post 35909151)
Truly horrendous this situation is and I cannot even imagine it at all, part of me thinks please GOSH let him pass away at home if this can be arranged without causing further pain and discomfort just please give these poor parents a memory of having their son at home. Yet the other part of me is thinking please just stop battling now you have did all you can but sadly now the time has come to now spend what precious time you have left with your baby boy, take him in your arms and cherish your final moments.

It's not really his home though, he's spent most of his short life in that hospital and apparently the equipment he needs is to big to fit through the front door and there's not enough room inside their house for it anyway, couldn't this have been sorted with a tape measure rather than a lawyer. I hope the nhs lawyers are retained rather than charging by the hour! Seems a shame they're wasting precious time in court imo to

Mick 28-07-2017 18:28

Re: Charlie Gard: Death threats sent to Great Ormond Street staff
 
BREAKING: Charlie Gard has died. RIP little man. :(

Damien 28-07-2017 18:40

Re: Update: Charlie Gard has died R.I.P
 
:(

Ken W 28-07-2017 18:44

Re: Update: Charlie Gard has died R.I.P
 
RIP Charlie Gard

weenie 28-07-2017 19:05

Re: Update: Charlie Gard has died R.I.P
 
My heart is breaking for Charlie's parents and family.

RIP little man

Paul 28-07-2017 19:42

Re: Update: Charlie Gard has died R.I.P
 
I feel sorry for every parent that loses a child, a sad time.

denphone 28-07-2017 19:53

Re: Update: Charlie Gard has died R.I.P
 
RIP Charlie Gard.:(

joglynne 28-07-2017 20:09

Re: Update: Charlie Gard has died R.I.P
 
RIP Little man. ♥

Osem 28-07-2017 20:21

Re: Update: Charlie Gard has died R.I.P
 
Yep, a terrible end to a very sad tale. I feel the parents have been let down by the system and then deprived of the one last chance to salvage something from this tragedy. I hope they can move on in time but I think they'll be left wondering what if?

RIP Charlie.


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