Cable Forum - Update: Charlie Gard has died R.I.P

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- - Update: Charlie Gard has died R.I.P (https://www.cableforum.uk/board/showthread.php?t=33705158)

Mick	24-07-2017 15:15

Re: Charlie Gard: Death threats sent to Great Ormond Street staff

Connie Yates. (Mother) Says while speaking in court, says he won't make his first birthday, which is next week. :(

denphone

24-07-2017 15:54

Re: Charlie Gard: Death threats sent to Great Ormond Street staff

Quote:

Originally Posted by Mick (Post 35909013)

BREAKING: Parents withdraw the application in the court room, to take Charlie to the US saying time has run out and it is no longer in Charlie's best interest. :(

Although extremely heart-breaking it was the right thing to do.

Osem	24-07-2017 16:30

Re: Charlie Gard: Death threats sent to Great Ormond Street staff

So very sad. I hope the parents can move on from this tragedy and one day be able to look back on their short time with their little lad with smiles rather than tears. :(

papa smurf

24-07-2017 21:59

Re: Charlie Gard: Death threats sent to Great Ormond Street staff

'We had a chance and we were not allowed': Charlie Gard's parents blame hospital as they end legal fight to save baby's life

Charlie Gard’s parents accused Great Ormond Street Hospital of delaying treatment until it was too late as they gave up their legal fight to save “their warrior son”.

http://www.telegraph.co.uk/news/2017...-could-decide/

Damien

24-07-2017 22:35

Re: Charlie Gard: Death threats sent to Great Ormond Street staff

Gosh are disputing that: http://www.gosh.nhs.uk/news/latest-p...t-24-july-2017

Quote:

Professor Hirano (“the Professor”), whose laboratory research has an international reputation, is very well known to the experts at GOSH and he communicated with them about NBT treatment for Charlie at the very end of December. In January, GOSH invited the Professor to come and see Charlie. That invitation remained open at all times but was not taken up until 18 July after being extended, once again, this time by the Court.

Quote:

It was, therefore, with increasing surprise and disappointment that the hospital listened to the Professor’s fresh evidence to the Court. On 13 July he stated that not only had he not visited the hospital to examine Charlie but in addition, he had not read Charlie’s contemporaneous medical records or viewed Charlie’s brain imaging or read all of the second opinions about Charlie’s condition (obtained from experts all of whom had taken the opportunity to examine him and consider his records) or even read the Judge’s decision made on 11 April. Further, GOSH was concerned to hear the Professor state, for the first time, whilst in the witness box, that he retains a financial interest in some of the NBT compounds he proposed prescribing for Charlie. Devastatingly, the information obtained since 13 July gives no cause for optimism. Rather, it confirms that whilst NBT may well assist others in the future, it cannot and could not have assisted Charlie.

RizzyKing

24-07-2017 22:43

Re: Charlie Gard: Death threats sent to Great Ormond Street staff

So the american doctor's interest increased with the publicity and rather then doing what was best for the little kiddie was more interested in promoting himself. I wish his parents all the best but the more i hear the more relieved i am this kiddie wasn't taken to the US R.I.P Charlie sleep easy.

papa smurf

24-07-2017 23:12

Re: Charlie Gard: Death threats sent to Great Ormond Street staff

Quote:

Originally Posted by RizzyKing (Post 35909070)

he's still alive

Connie Yates and Chris Gard say they now wish to spend "the maximum amount of time they have left" with their terminally ill baby.

RizzyKing

25-07-2017 01:09

Re: Charlie Gard: Death threats sent to Great Ormond Street staff

Apologies head is pounding and i misread.

Mr K	25-07-2017 09:44

Re: Charlie Gard: Death threats sent to Great Ormond Street staff

Sounds like the parents have been manipulated by the media, in order to sell newspapers, and further others agendas. Same old story. Some of the pictures and interviews have be worthy of a Hollywood production.

Hope the kid rests in peace and, if the parents do sell their story, all the money is given to GOSH or another charity.

papa smurf

25-07-2017 10:10

Re: Charlie Gard: Death threats sent to Great Ormond Street staff

Quote:

Originally Posted by Mr K (Post 35909088)

can i just point out that it is common courtesy to wait until a person is dead before issuing rip statements

Mr K	25-07-2017 10:18

Re: Charlie Gard: Death threats sent to Great Ormond Street staff

Quote:

Originally Posted by papa smurf (Post 35909095)

can i just point out that it is common courtesy to wait until a person is dead before issuing rip statements

You could argue the kid has suffered so much brain damage he was dead some time ago. Hopefully that might mean he hasn't suffered over the last few protracted weeks. All very sad.

papa smurf

25-07-2017 10:19

Re: Charlie Gard: Death threats sent to Great Ormond Street staff

Quote:

Originally Posted by Mr K (Post 35909096)

You could argue the kid has suffered so much brain damage he was dead some time ago. Hopefully that might mean he hasn't suffered over the last few protracted weeks. All very sad.

no i couldn't

Mick	25-07-2017 10:30

Re: Charlie Gard: Death threats sent to Great Ormond Street staff

Quote:

Originally Posted by papa smurf (Post 35909098)

no i couldn't

Nor me. The stupid legal battles and delays have robbed that poor boy of a chance of life.

An American dad whose son had same condition as Charlie and was treated by same doctor willing to treat Charlie in the US has blasted U.K. doctors, his son now has a better quality life. What an embarrassment our health system now looks to the rest of the world.

Damien

25-07-2017 11:50

Re: Charlie Gard: Death threats sent to Great Ormond Street staff

Quote:

Originally Posted by Mick (Post 35909103)

An American dad whose son had same condition as Charlie and was treated by same doctor willing to treat Charlie in the US has blasted U.K. doctors, his son now has a better quality life. What an embarrassment our health system now looks to the rest of the world.

If we're referring to the same US kid this one has the variant of the condition which affects the muscles rather than the brain.

https://www.thesun.co.uk/living/4091...-charlie-gard/

Quote:

Art Estopinan's son, Art Jr, suffers another form of mitochondrial depletion called TK2 - a "cousin" disease to Charlie's.

Charlie's condition is more serious as it means his brain is affected as well as his muscles.

Five years ago, Art Jr appeared to be facing death when he became the first human to be given nucleoside medication.

Art said his son was given a "new lease of life" by the drug and can now stand with the help of a brace and say a small number of words.

It's easier to reverse muscle damage than brain damage.

I do wonder how much of this is designed to make us look like an embarrassment. If what Great Ormond Street is saying is true then this doctor didn't visit Charlie Gard, didn't consult the scans he was sent nor consider the opinion of independent Doctors that GOSH invited in. I am not sure why we're taking his word, especially when he has a financial interest in the treatment, over that of GOSH when the latter are the ones who treated him daily.

Mick	25-07-2017 13:31

Re: Charlie Gard: Death threats sent to Great Ormond Street staff

The parents believed he did not have significant brain damage earlier on, they show a photo of him in early days in Superman outfit, eyes open and responding normally, he looked like a healthy baby boy.

GOSH have gone down in my estimations. No parent should have to fight the courts in such time wasting fashion. No doctor is right 100% of the time.

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